Tag Archives: nicu

the eric update – day 61: isolette! first bottle! rumours of an exit date!

day 61: movin' on up!

woohoo! we received a phone call from the nicu to not be freaked out when we arrived and found an empty radiant warming bed, since eric had been moved to an isolette! it’s a big step up, as the isolette is the step before an open, unheated bed, which is the step before going home.

after the move to the isolette, they removed eric’s temperature sensor that constantly monitored his body temp. this means that they are increasingly confident in his ability to regulate his own body temperature, which is one of the “exit criteria” for leaving the nicu. the isolette is still heated to keep a thermoneutral environment, which is the temperature that is needed to prevent him from burning any calories on keeping warm, as they’d like every bit of evergy to go towards growing and staying healthy. that said, they will slowly ween his off the thermoneutral settings, at which point he’ll get transferred to an open bed.

day 61: first bottle! I.

eric also took his first bottle today! i think it might be impossible to convey to non-nicu parents what a big step it was for him to guzzle down a bottle on the first try. it can sometimes take weeks for a micropreemie to get the suck-swallow-breath sequence down for an entire 20 cc bottle.

day 61: first bottle! II.

nurse nancy got the process started because she wanted to make sure he didn’t drown, but he did so well that she quickly transferred him over to kris so she could enjoy the moment.

day 61: first bottle! III.

gulp. gulp. even more amazingly – nurse nancy used a newborn nipple and not a preemie nipple, which makes it that much more difficult to get the milk. that means he’s got a pretty strong suck reflex.

day 61: first bottle! IV.

maybe he’s looking for a “high five”?

day 61: first bottle! V.

it’s time for a burb. as always, things are more complicated with a micropreemie, so it takes a bit to figure out how to burp him without accidentally stopping his breathing.

day 61: first bottle! VI.

nurse nancy shows kris how to stimulate eric’s suck reflex.

day 61: first bottle! VII.

who knew feeding could take so much effort. after the bottle is finished, eric falls fast asleep.

day 61: first bottle! VIII.

kris watches his monitor after the feeding. all the food in his belly can stimulate his vagus nerve which affects his heartrate and can lead to a “brady” ( bradycardia – a dangerous slowing of his heartreate ).

after nurse nancy saw how well eric was doing with the bottle, she casually asked us how the nursery looked. we looked at her blankly.

“uh. the nursery is still an office.”

she looked shocked and then said something that neither one of us could possibly have expected. “well, what are you going to do if everything “clicks” and he’s released in two weeks! get your butts in gear! have you taken the infant cpr class? have you watched the “shaken baby syndrome” video? there’s lots to do and he’ll be leaving quite literally before you know it.”

kris responded with exactly what i was thinking as my mouth went dry, “nancy. your lips are moving but there’s no sound coming out.”

before today i had been trying to manage my expectations and thought that if we were lucky, eric might be home by the last week of october or the first week of november. this hadn’t seemed an unreasonably assumption since the the neonatologist told us when we arrived that eric would most likely be in the nicu until his original due date ( around actober 17th ) plus ” a few weeks”. so it’s no small shock to find out that it’s not outside the realm of possibility that he could be home soon. she did say that it probably wouldn’t be exactly two weeks, but my guess is that they are likely looking at 2 weeks to a month. it’s odd to think that if he were released even in a month, he’d be coming home a full three weeks before his original due date.

i guess it’s time to get cracking at turning the home office into a nursery.

day 61: getting used to the isolette

even though the isolette is considered a big move, is still takes a bit of adjustment to get used to the new environment. after two months of having unobstructed access to eric, it’s hard to get used to having to reach into a “box” to say “goodnight”.

there’s also a lot less space around the isolette, since it’s less likely that a large number of personnel will need to gather around eric for an emergency intervention. and we’ve moved from a a quiet, corner on the far end of the room ( the room is a rectangle with the sickest babies at the far end of the rectangle and the healthiest babies at the near end close to the entrance ) to right next to the nurses station and the entry door, so it’s a lot more noisy.

i guess any change, no matter how positive, takes some adjustment.

the eric update – day 60: full feeds! goodbye IV. first latch!

day 60: measuring growth

jeez, louise – the kid can put on the weight. he added another ounce over the night and is now 1625 grams or 3 pounds 9.3 ounces. he has also added a half centimeter to his length and he’s now 42 centimeters or 16.53 inches. it’s just astonishing that he’s added four and a half inches to his length since birth, which is just about the the length of his entire leg! wow!

day 60: full feeds - so long, intravenous line. I.

in other big (ahem) news – eric started the day on 17 cc’s of breastmilk every two hours and we were mighty surprised when they decided to see how well he could tolerate a whopping 3 cc increase in the afternoon ( remember, up until this point they were increasing his feeds by one cc in the morning and one cc in the evening );

day 60: full feeds - so long, intravenous line. II.

amazingly, with the IV line gone, eric only has one major piece of equipment left – his nasal cannula.

so at noon they started feeding him a 20 cc’s of the good stuff every two hours! of course, being the champ that he is, he digested it just fine and they didn’t find any increase in undigested material sitting in his stomach. diligent readers will remember what happens when he hits the 20 cc mark; that’s right, he’s on “full feeds” and doesn’t need any supplemental nutrition so his intravenous line was removed! he’s IV free! once less entry point for bugs! whoohoo!

day 60: hello daddy nikon.

i sometimes wonder if he believes that all dads have a camera lens permanently affixed to their heads.

in even bigger news, after a week of non-nutritive suckling ( or, as the nurses like to say, “window shopping” ), eric decided to latch on and get a mouthful of milk! he didn’t really know what to do with the milk and looked a little surprised, but it’s another big, big step on the way to feeding like a big boy.

day 60: upper lip sans tape!

eric briefly has his feeding tube removed, which means we get a glimpse at his upper lip without tape! i don’t think i’ve seen a cuter upper lip, but maybe i’m biased.

i could be mistaken, but his lip seems to be curled into an elvis-like pose.

day 60:  the caring nicu touch

there’s nothing extraordinary about this picture of eric getting his temperature taken; i just realized that i had never captured how sweet the nicu nurses are with eric.

in this pictures, nurse cindy is taking his temperature and while she talks very soothingly to him, she gently strokes his cheek.

she’s not just doing it for our benefit, she does this kind of thing with all the kids regardless of whether or not their parents are present.

the eric update – day 58: weight gain. positive negatives and milestones. postcards!

day 58: snug as a bug.

after staying not gaining weight for almost a week after coming off the vent, eric seems to have started adding on a modest amount of weight each day, which is great. tonight’s weight-in put him at 1535 grams or 3 pounds 6.1 ounces and he’s on 14 cc’s of breastmilk every hours. last night they started to double his daily increases in breastmilk from 1 cc to two cc’s, by adding a cc in the morning and, if he tolerates the increase, they’ll add a second cc in the evening. so, late this evening, he’ll get another increase to 15 cc’s. since he only needs to be on about 20 cc’s every two hours to be considered to be on “full feeds”, i think it shouldn’t be too long before he’s off the intravenous drip entirely, which is great news since the IV line is a great entry point for all manner of infectious agents that we’d like to keep far, far away from eric.

and there’s good news regarding eric’s direct hyperbillirubemia; the sonogram of eric’s liver came back negative for any serious structural defects or major blockages and the first round of liver function tests also came back negative. this means that most of the really bad things that could be causing the condition can be safely ruled out ( well, really only about as ruled out as you can rule out something with a negative result on a micropreemie. remember, the small sample sizes can sometimes give you false negatives. ). given the lack of positive results ( in this case, positive is actually a negative ), the prevailing educated guess is that the condition is “merely” due to changes that occur when you switch back and forth between intravenous feeds and breastmilk, and it should resolve itself after eric goes back on full feeds, which will hopefully be very soon.

day 58: eric's preemie calendar

today, our neighbor who has 2-year-old triplets who were born preterm, gave us a “preemie calendar” which has a sheet of stickers that you’re supposed to put on the days on which certain milestones are reached.

kris and i laughed at some of the ones that we’re still anxously awaiting, such as “Moves to Isolette!”, “Saw Your Face Without Tape on It!” and “Off Oxygen!” ( you’ll probably have to view the large sized image to actually be able to read the stickers ). i’m not sure how i would have reacted two and half months ago had anyone told me that i’d be patiently awaiting for the day i’d see my son’s face without a single bit of tape. but, i guess you’ve got to celebrate the milestone’s you have, not the ones you thought you were going to have. or something like that.

in case you were wondering, the postcards are still coming in! i know i’m probably redundantly repeating myself, but i really, truly am appreciate of every single postcard and i can’t wait until eric is old enough to understand what it all means.

the eric update – day 57: a nice, quiet day. but liver problems looming?

day 57: wide-eyed wonderment

today was a relatively quiet day, with nary an alarm and only the occasional, normal “desat” ( lowering of the percentage his blood oxygen, which is associated with bradycardia and apnea ) that he seemed to be able to pull out of all by himself. he put on about an ounce and tipped the scales at 3 pounds, 4.7 ounces or 1495 grams; also, he’s an astonishing 41.5 centimeters or about 16.33 inches, which means he’s added over an inch to his length since the last time they measured him, and he’s over 4 inches longer than his birth length!

unfortunately, we discovered that eric’s conjugated or “direct” bilirubin levels are rising, which is cause for some concern and eric will get increasingly jaundiced, if the cause is not discovered. it might sound like eric is just having another bout of the physiologic jaundice that all babies can get which can be fixed by phototherapy, but unfortunately things are not that simple.

the two types of jaundice have different causes and different treatments. the good news is that we’re probably seeing the result of eric’s liver getting “sludgy” ( the neonatal nurse practitioner’s term, i swear ), which is not too uncommon after switching back and forth between intravenous feeds and breastmilk ( which is what has happened to eric ); if the cause really is eric’s sludgy liver then we can expect the issue to resolve itself after he gets back on full feeds. but there are also many other less fun things that can cause higher levels of conjugated bilirubin and they are currently trying to rule those out. he’ll have an ultrasound of his liver sometime during the night and they drew a bunch of blood for a panel of liver function tests, but we won’t know the results of those tests for a couple of days.

if it’s not one thing, it’s surely another in the nicu.

in most of the pictures of eric, there is an overhead light on that provides the ambient light. however, 99% of the time there is no light on because micropreemies like things dim and quiet. normally i try to time the pictures around eric’s regular interactions with the nurses, so i don’t have to turn on the light more than normal.

although having the lights on allows for easier picture taking, it will cause eric to squint in many pictures. but most of the time, he’s not squinting, but rather is looking around with big, round eyes.

today, the x-ray viewer was turned on, which provided just enough ambient light for me to catch a shot without eric quinting. he is relaxing and has is hands behind his head ( e.g. like here ) and is looking around with a look of wonder.

day 57: eyelashes

eric has enormous eyelashes, which me most certainly got from me. when i was young, i had a teacher that was convinced that i curled my eyelashes and wore mascara.

nope. no makeup was required, just the right genetics.

day 57: eric IV.  the mobile edition.

thanks to the fine folks at flickr and my sidekick, i have a really good answer whenever people on the street ask me how eric is doing and if i have any pictures in my wallet.

while i don’t have any in my wallet, i do have over 200 “in” my phone 🙂

( don’t get me wrong, the original sidekick sucks in every other possible way and shouldn’t be used if you want anything resembling a reliable phone. but i guess i can’t say anything about the new model ).

perhaps you have never had the occasion to try out the site on the small screen, but a lot of hard work has obviously gone into getting things to work quite smoothly.

incidentally, cell phones are banned in the nicu, but i believe the banishment is for social and not technical reasons, since you can often hear civilian’s cell phones going off ( i.e. someone in the area probably always has a phone on and it doesn’t cause any problems ) and some of the hospital staff ( respiratory techs in particular ) take calls on cell phones while they are in room. so, while i don’t take calls, i’m usually available for instant messaging or answering flickr photo comments.

day 57: i come in peace.  and bearing ( ahem ) gifts.

i forgot to take a photo yesterday of some of the nice gifts sent by my sister that we gave to eric on his second lunar birthday. the bear makes a wooshing womb sound that is supposed to be soothing for babies. and he’s wearing necklaces with the symbol for “odin’s knot”, which is quite appropriate since eric is otherwise known as odin. she also sent a couple of blank postcards with the the original odin on the front. oh, and there was also a pair of vans. it might be awhile before he fits into them, but we’ll surely keep them around and get a picture of the event.

you can hear the sound the bear makes by watching this movie.

the eric update – day 56: eric’s second lunar birthday!

day 56: a lunar birthday party

thankfully, eric’s alarms stopped alarming and everyone feels quite confident that the whole hullaballoo was just eric’s way of saying that he needed a little more help breathing that we thought. without the constant alarms, we were able to enjoy a relatively quiet 8 week birthday. eric’s friends all gathered around to wish him a very happy birthday. after eric was finished socializing, i had the chance to give him his very first “spit bath”! it took me a little longer than kris takes when she gives him a bath, but we eventually made it through the process relatively unscathed.

kris will claim that she doesn’t know how to take nice photos, but i think this series proves that she’s fibbing.

day 56: a lunar birthday spit bath. I.

there’s a diaper under his head to help prevent water from soaking his bed. the nurses never put a diaper under his head when kris gave him a bath, so i believe they’re really thinking that i don’t know what i’m doing 🙂

day 56: a lunar birthday spit bath. II.

he’s trying to subtly let me know that i should hurry it up so he can get back to sleeping.

day 56: a lunar birthday spit bath. III.

one simply must have a sqeaky clean forehead on one’s second lunar birthday.

day 56: a lunar birthday spit bath. IV.

as i’m trying to give him a bath, he grabs my finger very tightly and won’t let me pull it away as he looks right at me as if to say, “enough, already!”

day 56: a lunar birthday spit bath. V.

he keeps looking right at me as i clean the folds in his neck, as i think about how amazing that he actually has folds of skin on his neck, given how skinny he was just a few weeks ago.

day 56: a lunar birthday spit bath. VII.

you don’t want to leave any soap on a micropreemie’s head, so it’s mighty important to give him a good rinse.

day 56: a lunar birthday spit bath. VIII.

it’s that easy to scrub his back with the intravenous lines and nasal cannula, but we make the best of the situation.

day 56: a lunar birthday spit bath. IX.

his head is drying under the towel as i’m scrubbing his legs and feet.

day 56: a lunar birthday spit bath. X.

i’m picking him up as kris is changing his bedding and simultanously trying to take a picture. he’s a little bigger than the last time i held him like this on day 8 ( she took that picture too ).

day 56: a lunar birthday spit bath. XI.

kris and i have switched roles and now i’ve got the camera. he’s looking up at her as she’s telling him what a super job he did enduring my bath, which was twice as long as the those that she gives him.

she’s getting ready to put a “big boy” top on him to help keep him warm after the bath.

day 56: a lunar birthday spit bath. XII.

all done! baths are quite tiring, he almost immediately falls asleep and enjoys a lunar birthday nap.

day 56: serenity

clinically speaking, eric is doing very, very well, which is amusing to say considering all the alarms just yesterday. he’s tolerating his feeds as well as anyone could expect and the amount of undigested material that they are pulling out of his stomach between feeds is gradually diminishing. i think that it might be possible for him to be back on full feeds by the end of the week. he’s looking a little pallid due to a gradually decreasing number of red blood cells. so, despite the hope that he might have recently had his last transfusion, it looks like he might get one ot two more.

i haven’t been giving any updates on his weight because he hasn’t been adding on any weight. i discovered that being on the vent is a great way to add weight to a micropreemie, since it’s doing all the work and they can convert the extra energy towards gaining weight. since eric’s not on the vent, it’s not unusual for him to stop adding weight as quickly as he had been; however, i think they’ll look at adjusting his diet a bit in the coming days, since it’s not a good thing to not put on any weight for five whole days.

day 56: full moon lunar birthdays

we always know that odin’s lunar birthday is approaching because it coincides with the full moon. well, technically, it’s a day after the full moon, but it looks full enough to me. i realized tonight that i hadn’t bothered to capture a photograph of the moon 4 weeks ago, and i couldn’t let it happen again.

it’s seemed like a big, bright birthday candle in sky as we took the dogs for their nightly walk.

the eric update – day 55: please keep your seatbelt tight and your hands safely inside the car.

day 55: false alarm?

today was quite exhausting, but in the end it might hopefully be best remembered as eric’s first, big false alarm. he started “alarming” ( meaning his breathing stopped and his heartrate would drop to dangerously low levels ) suddenly over the prior night and he kept it up through the morning. protein showed up in his urine which normally might not cause immediate concern. but it could possibly indicate a blood infection; taken with the increase in alarms, and his previous history of “crashing” fast, the staff went into “red alert” mode and started running tests to try to narrow down what was going happening. ( in this photo, eric is remaining remarkably calm, despite having a bag taped to his groin to collect urine for a more extensive analysis. )

coincidentally, eric’s neonatal nurse practitioner was also on duty during his prior two “crashes” and made it clear that she was being hyper-vigilent. in a sense, it was reassuring to know that someone was watching his every move who was intimately aware of his ability to crash suddenly and without many of the normal warning signs ( trouble digesting food or bad blood gasses or immune cell counts ). she talked with us for quite some time about how strong a fighter he was, but that it can be more difficult to know how to treat him; unlike a “wimpy white boy” who will wear his ailments on his sleeve, he fights and fights and fights and looks fine, until he can’t fight anymore and crashes fast.

when we talked in the morning, the n.p.p becky was leaning towards the theory that eric was suffering from a bug that wasn’t responding completely to his antibiotic treatments. looking over his record, she thought she could see a pattern of getting sick 4 or 5 days after being taken off antibiotics. by noon she was so convinced of her theory that was prepared to start him on “big boy” antibiotics ( the nurses term for antibiotics which are reserved for treating the nastiest of the nasty bugs ) even without any strong evidence that he had an infection.

in the end, after hours of alarms and lots of theories about what may or may not be happening, they decided to turn up the rate of air flow on his nasal cannula and he stopped all of his “naughtiness” ( nurses term for when babies alarm ). it’s impossible to describe what it’s like to spend the day trying to muster the energy to yet again prepare for the worst, only to things quiet down after fiddling with knobs.

a false alarm? we’ll know more if he makes it through the night without any more problems.

day 55: the great escape?

after the staff turned up his flow, he start to get less listless and more active ( a good sign, since turning into the equivalent is one of the possible signs of an impending infection ).

as we prepare to leave for the evening, eric decides that he’s ready to bust out of the nicu and attempts to wiggle off the radiant warming bed.

the eric update – day 54: his first “onesie”! and non-nutritive suckling!

day 54: admiring his new "onesie".

eric’s intravenous line was moved to his foot, so we were able to dress him in his very own cloths today!

pooh and piglet came over to check out his new duds and compliment his on being healthy enough to ditch the hospital outfits. pooh is particularly amazed at how big eric is getting, while piglet is confused as to why the bears on eric’s shirt don’t look like pooh bears.

we received the shirt from beth, a friend of kris’ who also recently had a preemie in the nicu ( thanks! ). i believe the shirt can be found at target and is one of the few preemie specific outfits that they carry in the store. it’s a little hard to tell from the picture, but he still has plenty of room to grow in clothes, which is funny because they look so tiny compared to full-term baby outfits.

day 54: got milk?

today, we reached a milestone that nicu veterans probably suspected was fast approaching when they saw the supersized paci. that’s right, the sometimes long and complicated process of getting a micropreemie to breastfeed has officially begun with what’s known as non-nutritive suckling. essentially, after kris has pumped ( charming phrase, no? ), she puts everything in place while eric gets a feeding through a tube. it’s the first step towards getting eric to realize that food doesn’t always come from a syringe; despite the fact that no feeding takes place, it has innumerable good side effect, from aiding in mama and baby bonding to helping kris to sustain her milk production. it’s not unusual after 6 or 8 weeks of pumping for milk production to begin to fall off if real breastfeeding hasn’t begun, so it’s time to start trying tactics to keep production up, since even if everything does optimally well, it could be weeks before eric is able to coordinate the complicated series of events that need to occur for proper breastfeeding.