ugh.

harper’s epilepsy

is slowly and steadily getting worse. while he used to go 60 days
without seizures on one medicine, he’s now maxed out on two
medicines and having clusters of seizures over several days – every
week or two.

unfortunately, he’s also started getting lethargic and refusing
food, which is a bad sign. today, he had a grand mal while standing
at the top of basement stairs and tumbled, seizing the entire
distance, down the steps. luckily, he doesn’t appear to have any
broken bones, but it looks like we’re going to have to make some
tough decisions soon.

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